2008 Art Exhibit and Fund Raising Event of Danielle O’Keefe

Art Exhibit and Fund Raising Event for National Epidermolysis Bullosa Awareness Week

2008 Art Exhibit and Fund Raising Event - Landmark Gallery and Framing, Wallingford, Connecticut
Landmark Gallery & Framing,
Wallingford, Connecticut

In November, 2008, Danielle O’Keefe approached a Frame Shop named Landmark Gallery and Framing in Wallingford, Connecticut that is owned by Gillian Zimmerman and asked if she could display some of her artwork and a small display in support of National Epidermolysis Bullosa Awareness Week. Happily, Gillian agreed to host the exhibit and display that they called, “2008 Art Exhibit and Fund Raising Event” of Danielle O’Keefe”.

Danielle O’Keefe suffers from a genetic disorder known as Epidermolysis Bullosa. Epidermolysis Bullosa (commonly referred to as EB by sufferers of the disorder) affects the skin and surface areas of the body, which includes the eyes, mouth, teeth and all internal surfaces too. As a result, tears, blisters, bleeding sores and pain are a common part of everyday life for those that suffer with it. Because it is very rare, Danielle has a deep interest in spreading awareness of this disorder and her “2008 Art Exhibit and Fund Raising Event” at Landmark Gallery was her way to get the word out.

2008 Art Exhibit and Fund Raising Event - Danielle O'Keefe and Gillian Zimmerman (Gallery Owner)
Danielle O’Keefe and Gillian Zimmerman (Gallery Owner)

In support of the event, Danielle also had a front page article written about her in a local newspaper. The article provides a touching summary of Danielle’s life struggles with EB, and how her family has rallied around her.

With the exposure from the exhibition and the printed article, Danielle was able to raise donations that she donated to an EB charity. Increasing awareness of EB is important for generating donations and the financial support needed to do research into a cure. Here is a letter, written in Danielle’s own words, that accompanied her artwork at Landmark Gallery.

2008 Art Exhibit and Fund Raising Event - Danielle's personal letter displayed at the exhibition
Danielle’s personal letter displayed at the exhibition.

Art Exhibit of Danielle O’Keefe

2008 Art Exhibit and Fund Raising Event - Artwork, Parrot
“Parrot”
11×14, Oil on Board,
Danielle O’Keefe,
Spring 2008 (12 years old)
2008 Art Exhibit and Fund Raising Event - Artwork, Butterfly
“Butterfly”
4×6, Oil on Board,
Danielle O’Keefe,
Summer 2007 (11 years old)

(Butterflies, with their delicate wings, have come to symbolize the fragility of the skin of EB patients.)

2008 Art Exhibit and Fund Raising Event - Artwork, Landscape
“Landscape”
8×12, Acrylic on Paper,
Danielle O’Keefe,
2002 (6 years old)

(During a hospitalization for a skin infection, Danielle created the painting named, “Landscape”.)

Newspaper Articles about Danielle’s Early Life

In addition to the successful exhibition to spread awareness of EB locally, below are two articles about Danielle, her daily struggle with EB, and its effect on her entire family. The first article about Danielle was published in 1998 and the second article was published in 2008. Both articles were written by journalist Jeffery Kurz for ‘The Record Journal’ located in Meriden, Connecticut. The files are large in size and may take a few moments to download. (Articles By: Jeffery Kurz, Photography: Chris Angileri)

Everything is Complicated, The Record Journal, Nov 3, 2008
“Everything is Complicated”
The Record Journal
(Nov 3, 2008)
Danielle's Burden, The Record Journal, Nov 1, 1998
“Danielle’s Burden”
The Record Journal
(Nov 1,1998)

Epidermolysis Bullosa Information

Overall, Danielle’s experience with 2008 National EB Awareness Week was a success. To further promote EB awareness, below are links to organizations that are helping families and the medical community in the search for a cure for Epidermolysis Bullosa (EB).

The Dystrophic Epidermolysis Bullosa Research Association of America
The Dystrophic Epidermolysis Bullosa Research Association of America
Epidermolysis Bullosa Medical Research Foundation
Epidermolysis Bullosa Medical Research Foundation
 

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